VOICED: Rare disease keeps sufferers in the shadows

The video follows five-year-old Ibrahim, who has a rare genetic disorder that makes him highly susceptible to skin cancer from UV light. His daily routine involves extensive precautions to protect against sunlight. His school in South Paris has adapted to his needs with UV filters and special lighting, allowing him to attend classes. However, he cannot join other children in the playground. The condition is extremely rare, with about 50 new cases annually in France. While there is no cure, adaptations offer hope for a fuller life.

What challenges does Ibrahim face when getting ready for school?

How does Ibrahim's genetic disorder affect his daily life?

What precautions are taken to protect Ibrahim from sunlight?

What modifications were made at Ibrahim's school to accommodate him?

What is the likelihood of being born with Ibrahim's condition in France?