The Teenager With Butterfly Skin

The video discusses epidermolysis bullosa (EB), a skin condition causing fragile skin and painful blisters. It highlights the daily challenges faced by Sohana, who has recessive dystrophic EB, including extensive dressing routines and social interactions. Despite these challenges, Sohana maintains a positive outlook, supported by friends and family. The video also emphasizes the importance of fundraising and research to improve the lives of those with EB.

What is a common consequence of the constant itch experienced by individuals with EB?

• Increased hair growth

• Reduced skin sensitivity

• Skin wounds and bleeding

• Improved skin texture

What does the term 'recessive dystrophic EB' refer to?

• A type of EB that improves with age

• A type of EB that is contagious

• A type of EB affecting only the skin

• A type of EB affecting the eyes, mouth, and throat

Why does the narrator need to apply eye drops regularly?

• To prevent the eye from sticking to the eyelid

• To improve vision

• To reduce eye size

• To change eye color

How do people often react when they see someone with EB in public?

• They offer immediate help

• They often stare and ask questions

• They ignore the person

• They assume the person is an athlete

What is a common misconception about EB when traveling?

• It is a sign of wealth

• It is a sign of good health

• It is a temporary condition

• It is a contagious disease

What has been achieved through fundraising efforts for EB?

• A global awareness campaign

• A new sports program for EB patients

• Over 5 million pounds raised for research

• A complete cure for EB

What quality of the narrator is highlighted in the final section?

• Her athletic ability

• Her humor and resilience

• Her musical talent

• Her cooking skills