VOICED: Rare disease keeps sufferers in the shadows

The video follows five-year-old Ibrahim, who has a rare genetic disorder that makes him highly susceptible to skin cancer from UV light. His daily routine involves extensive precautions to protect against sunlight. His school in South Paris has adapted to his needs with UV filters and special lighting, allowing him to attend classes. However, he cannot join other children in the playground. The condition is extremely rare, with about 50 new cases annually in France. While there is no cure, adaptations offer hope for a fuller life.

What is the primary reason Ibrahim needs special clothing and equipment?

• To stay warm during winter

• To protect against ultraviolet light

• To look fashionable

• To play sports safely

What measures has Ibrahim's school taken to ensure his safety?

• Installed UV filters and anti-UV lights

• Built a special playground

• Provided a personal tutor

• Offered online classes

Why is Ibrahim not allowed to go into the playground?

• His condition makes it unsafe

• The playground is too crowded

• He prefers staying indoors

• He has a fear of heights

How rare is Ibrahim's condition in France?

• One in a thousand

• One in ten thousand

• One in a million

• One in a hundred

What hope is there for children like Ibrahim despite the lack of a cure?

• Finding a cure soon

• Living a full life in the shadows

• Becoming famous

• Traveling the world