Some Unpleasant Facts about Research Priorities

The video discusses sickle cell disease, affecting mainly African Americans, and highlights the lack of treatments and preventive measures. It explores the genetic causes, health impacts, and the role of race and economic status in funding disparities. The video also covers current treatments, including hydroxyurea and CRISPR, and the challenges in implementing preventive measures like antibiotics and screenings. It emphasizes the need for quality measures and compares funding with cystic fibrosis, noting significant disparities.

What is a significant factor affecting the attention and funding sickle cell disease receives?

• Geographical location

• Race and economic status

• Type of healthcare system

• Age of patients

What is the genetic cause of sickle cell disease?

• A bacterial infection

• A viral infection

• An autoimmune disorder

• A gene mutation

Which recent technology shows promise in treating sickle cell disease?

• Chemotherapy

• Radiation therapy

• Stem cell therapy

• CRISPR gene editing

What preventive measure is recommended for children with sickle cell disease to reduce infections?

• Monthly vaccinations

• Daily vitamins

• Regular exercise

• Daily antibiotics

What percentage of children received a yearly transcranial Doppler screen according to a study?

• 18%

• 75%

• 44%

• 60%

How does the funding for cystic fibrosis compare to sickle cell disease?

• It is about the same

• It is slightly less

• It is significantly lower

• It is significantly higher

What is a major reason for the lack of quality measures for sickle cell disease?

• Low incidence in some states

• Complexity of the disease

• Lack of interest from healthcare providers

• High cost of implementation